My Cancer Care Record Project

Pilot commences in north eastern Melbourne and extends to regional Victoria

My Cancer Care Record is a new resource that aims at assisting people affected by cancer to store their personal health and medical information in one place. It also provides people with tips on questions and information they might ask of their health professionals and supports them to record and recall specific details or instructions that can be hard to remember.

The resource is appropriate for patients with any type of cancer and is intended to be used across any health service.

My Cancer Care Record is currently being piloted with 11 health service providers at 14 different sites; this includes ten sites in north eastern metropolitan Melbourne and four in regional Victoria. Pilot sites include day oncology and radiation oncology units.

The need for a similar patient-held resource has also been recently identified by staff working with the Loddon Mallee Regional Integrated Cancer Service. Following a keen expression of interest, four sites in the Loddon Mallee region were chosen to collaborate on the pilot of My Cancer Care Record and explore its use and suitability amongst people affected by cancer and living in regional Victoria.

Nominated clinicians within the pilot sites are assisting by distributing the folders to patients and informing them on how to use and benefit from the resource.  Feedback from patients and clinicians is being used to further refine the resource, ahead of a broader implementation into routine care.

For further information, contact:
Anna Mascitti

Service Improvement Facilitator - Coordinated Care & Consumer Engagement
Ph 9496 3261

My Cancer Care Record was officially launched at the NEMICS annual forum 
on 26th August 2014

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My Cancer Care Record - Highly Commended

My Cancer Care Record received a Highly Commended award at the recent Austin Health Consumer Engagement Awards. This was awarded in recognition of outstanding consumer engagement throughout the project.

A big thank you to the consumers and clinicians who have helped in this project! The poster can be viewed in the documents below.

Pictured from left:
Renee Chmielewski (Austin Health Consumer Engagement Manager),
Jason Payne (Director, Cancer & Neurosciences), Fay Frazer (NEMICS Consumer Representative),
Anna Mascitti (NEMICS Service Improvement Facilitator), Max Shub (NEMICS Consumer Representative)

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Introduction of My Cancer Care Record 

My Cancer Care Record is an initiative of the NEMICS Consumer Reference Group.  My Cancer Care Record is a new resource to support people living with cancer to store and record their medical and health-related matters in one place. It also guides people to the information they might request of their health care professionals.

Cancer care can be complex and challenging, can involve multiple treatments provided by multiple people, across different services and over long periods of time. People affected by cancer need to keep abreast of their information to be able to communicate this across the variety of health care professionals involved in their care.

My Cancer Care Record has been developed to assist people affected by cancer and their health care professionals.  It seeks to support the active engagement of patients in their care and also encourages health professionals to provide relevant information to their patients.

My Cancer Care Record will assist people affected by cancer to:

  • recall and communicate their cancer related information to the variety of health professionals they interact with
  • organise and store their relevant cancer information in the one place
  • assist them to answer those questions frequently asked by health professionals
    • What medications are you on?
    • Have you any other medical problems?
    • What is the name of the chemotherapy medication you are having?
    • When did you complete your radiotherapy?
  • be aware of the sorts of questions they might ask to become more informed

The resource will assist health professionals with easy access to information that is often required such as:

  • copies of test results and summaries from other hospitals/doctors
  • current medication, medical and family history, current treatment schedules
  • details of side effects & symptoms a  patient has had since their last appointment
  • contact details of other clinicians involved in a patients care

The development of this resource has been led by a very dedicated consumer reference group, with valuable support of an advisory and implementation group. This group has contributed significant clinical expertise to refine ideas and content and has included health professional representatives from public and private health services and Cancer Council Victoria.


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